X-Message-Number: 26925
Date: Sat, 3 Sep 2005 16:29:01 +0200
From: Eugen Leitl <>
Subject: [: [ccm-l] Home Death:The Caregivers' Experiences]

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From: Eric Hodgson <>
Date: Sat, 03 Sep 2005 15:42:48 +0200
To: 
Subject: [ccm-l] Home Death:The Caregivers' Experiences 
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Home Death?The Caregivers' Experiences 

Journal of Pain and Symptom Management 
Volume 30, Issue 1 , July 2005, Pages 70-74

Yoram Singer MD, Yaacov G. Bachner PhD, Pesach Shvartzman MD and Sara 
Carmel PhD 
Center for Family Medicine and Primary Care (Y.S., P.S.) and 
Department of Sociology of Health (Y.G.B., S.C.), Faculty of Health 
Sciences, Ben-Gurion University of the Negev, Beer-Sheva, Israel 


Abstract
The objectives of this study were to evaluate caregivers' experiences 
concerning the care of a terminally ill loved one at home, and to 
compare the death experiences of caregivers with and without access 
to homecare programs. The primary caregivers of all the patients who 
died of cancer 6?18 months before the study period (1999?2001) in the 
Negev area were contacted. This group included 240 caregivers of 
patients who died in the home palliative care program and 404 
caregivers of patients who died with no access to a home palliative 
care program. A total of 159 caregivers were interviewed, 76 from the 
home palliative program and 83 who had no access to a palliative care 
program. Death at home occurred for 80.3% of patients with access to 
homecare and 20.5% of those without access. Despite the fact that 
caring for a loved one at home was a greater financial and emotional 
burden, there was a greater overall satisfaction with the caring 
experience of those whose loved ones died at home and had access to 
the homecare program. Given appropriate professional support systems, 
home-based care at the end of life is preferable to most caregivers. 

Key Words: Home death; caregivers; cancer patients


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Eugen* Leitl <a href="http://leitl.org">leitl</a>
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