X-Message-Number: 7480 Date: 10 Jan 97 23:23:58 EST From: Mike Darwin <> Subject: Euthanasia and autopsies Robin Helweg-Larsen suggests some firsts steps in dealing with ME's cases. This is constructive as it constitutes the first time someone has done more than I and others have, which is to moan about the problem (albeit, a useful first step). Euthanasia first: There are many possible approaches to dealing with this problem. I favor a straightforward acknowledgement of it early on, and the preparation of FACT SHEETS or discussion of the issue in the primary literature cryonics organization's use. For instance, if I were writing CRYONICS: Reaching for Tomorrow all over again, I would include at least two new chapters. One chapter would deal extensively with the unapparent or "hidden" costs of cryonics (lifetime outlay large amounts of money, prejudice against getting into experimental treatment programs when dying, anxiety about arresting under good circumstances, family problems, etc.). The other chapter would deal with active and passive euthanasia and would inform prospective members, the public, and the press of the personal, ethical, legal, logistical, and public relations problems associated with these choices. I would also do what I planned to do before I left Alcor which was to append several case histories of actual patients which highlight the very serious ethical and legal problems cryonics can create. What do you do if you're faced with a choice between a bowel resection that might buy you a year or two of added quality life, but at the cost of getting cryopreserved? With viatical companies buying life insurance policies for cash this becomes a real option! In fact, CryoCare and BPI were already confronted with just such a case (although insurance was not at issue). I think it is important to have open discussion up-front because then the media and the public know we are thinking about such issues and that we are dealing with them honestly and openly. Most importantly, if the discussion is handled right, issues confronted by cryonicists regarding euthanasia can be related to similar situations confronted by noncryonicists. For instance, many noncryonicists will have to make decisions to stop treatment to safeguard values they hold higher than a few months of relatively low quality life. There are many other analagous situations that people confront today irrespective of cryopreservation arrangements. Finally, I think all responsible cryonics organizations and service providers should at least _try_ to sit down and come up with some general guidelines dealing with these issues. It is not sufficient to say "Well, we just won't discuss the fact that this dying patient is dehydrating because they want a good cryopreservation." That won't work. Family that is very supportive of this decision at the time may turn on the cryonics organization with time. Family hostile to cryonics from the start may make an issue shortly after the patient is cryopreserved. Trumped up accusations of mental incompetence or actual malfeasance may be used. This is no idle issue, since many patients who elect to "die early" by dehydrating are doing so because they have brain involvement (primary brain tumor, metastases, stroke, etc.) in their disease and do not want it to get worse. This opens the door to the issue of mental competence. And that issue cuts both ways. In two cases (Dick Jones and Jeannie Curran) people who were clearly incompetent were ruled competent by the courts. The reverse not only can happen, but I predict inevitably WILL happen. If cryonics grows more popular it will begin to cause social and economic dislocation. I have already seen poor family members (people with minimum wage jobs) spend virtually all available cash from their loved one's esate to get the badly decomposed body of their relative cryopreserved. There will be more of this, and great resentment will be generated by diversion of resources from next of kin to cryonics organizations. I predict that the issue of passive euthanasia in the context of cryonics will be made a major issue in the courts. Preparation for this needs to start now, and open discussion of these issues, and more importantly, a _history_ of such open discussion will, I believe, serve cryonics organizations well. Medical Examiner's Cases: If you want people to meet your expectations or satisfy your needs, the first step is to articulate those expectations and needs clearly. There are certainly many things that would go a long way towards helping improve the quality of care delivered to cryopatients who become ME's cases whether they are autopsied or not. Here are some thoughts in no particular order: 1) A nonthreatening fact sheet for Coroners and ME's needs to be made available which provides basic background on cryonics, and suggests simple things that can be done to facilitate cooperation and avoid trouble. 2) Getting agreements from State and national organizations of ME's and Coroners to recommend allowing implementation of simple things like direct ice cooling at the time of death or discovery, beginning the PM exam in the anatomical location most likely to yeild cause and mode of death in non-criminal cases, and arranging for prompt transport and prompt release of cryopatients would be a big first step. 3) Getting data from noninvasive means is another item that can also be laid on the table. However, it has to kept in mind that people do not surrend power or authority easily. Coroner's and ME's have great power and take great satisfaction from their work -- work which is both scientifically intensely interesting and socially useful. It remains the case that their interests and those of cryopatients will often be at serious odds with each other. This understanding is pivotal because it tells cryonicists that negotiation will go only so far, and further, that if cryonics grows in popularity it will likely cause a serious backlash in medicolegal circles. Finally, I have spoken of the high cost of cryonics in my recent posts. I wish to elaborate a little: cryonics upsets, overturns and distorts the social fabric in a way few things can do. It impacts third parties more than abortion or pornography do, and it disrupts conventional ideas about death, inheritance, privacy, and immortality. It will cause a "graying" of criteria for "when death is" in a way that makes abortion's shading of the criteria for "when personhood is" pale by comparision. While the social system is elastic, it also has recoil. We are in the elastic phase now (after a previous SMALL distortion and recoil). But it will not last. People who deform the system beyond its elastic boundaries permanently usually pay a high price for this. Bruno, Gallileo, Vesalius, Goddard, Semmelweiss... I could list pages of people who stretched the system to its breaking point. True, there are people like Darwin (who set off a powerful corrosion of Judaeo-Christian values) who escaped relatively unscathed (he wisely stayed away while Huxley did the dirty work ;-). And there were people like Copernicus who waited until they were safely dead before unleashing their socially corrosive ideas. Cryonics is a very mischevious idea and a very corrosive one to the existing social, political and moral order. It removes one more absolute from life: the certainty of death in a fixed period of time. This will be a very disruptive thing to do, and thus will cost those who will do it a LOT. In fact, I think many people interested in cryonics instinctively understand this and avoid more active involvement for this very reason. In mechanical systems the recoil which occurs after distortion is understood as a manifestation of the law of conservation of matter and energy. In social systems, a similar law operates. I submit that you cannot overturn the fundamental basis of this civilization without a fair amount of cost (or energy expended). So, the first thing that needs to be brought to the table in any discussion of these tough issues is an awareness that doing what cryonicists want to do isn't going to be the equivalent of an ice cream social. If you think you're going to get cryonics at bargain basement prices there is simply no basis for meaningful discussion. This is the root of a great deal of trouble in the world at large, and the cryonics community in particular. As Bob Dylan said: "It may be the Devil, or it may be the Lord, but you gotta _serve_ somebody." Mike Darwin Rate This Message: http://www.cryonet.org/cgi-bin/rate.cgi?msg=7480